Wednesday, December 3, 2008

** Launches Fibromyalgia Community Site **


I've joined and put up my profile. The website, which has been receiving some great accolades for their existing patient communities (ALS, MS, etc), is launching a community site for fibromyalgia, based on great demand from fellow patients out there! How exciting is that - this proves so many positive things surrounding the illness, some of them being increased awareness and the growing "validity" of the illness in the medical community. This is a great website for us to share not just our personal info and experience, but treatment, medication and symptom history with others in a nice little visibly effective chart that allows you and others to track your progress. I'm still working on building my history, which I expect to show a very interesting progress chart (less medications, less treatments and less symptoms over the years!). I'm a stats/numbers geek so when I see things like this I have to admit I do get a bit too excited. Anyway, I encourage you to check it out and register!!!! My profile is

Also, I don't know how many people are going to read this today, but there is going to be a section in CBS Evening News tonight at 630pm featuring PatientsLikeMe...check it might discover a little surprise...

One last bit - I did my moderate bike for 30 minutes on the trainer this morning. I felt ok, legs are still feeling pretty heavy and slow. Right hip and back are kind of killing, but i'm stretching them out all day long. I really am working towards losing about 7-10 pounds. Losing the load off my muscles and joints would help me greatly with running long distances - right now i'm just lugging around too much for too long! Tomorrow is 5 miles, easy...long...boring...easy but not really easy training day it will be and i'm really looking forward to it!

1 comment:

FluidEssentials said...

I hadn't visited patientslikeme. Thanks for the info. And thanks for the inspirational posts.