Wednesday, December 3, 2008

** Patientslikeme.com Launches Fibromyalgia Community Site **

IT'S LIVE. I ENCOURAGE YOU TO JOIN.

I've joined patientslikeme.com and put up my profile. The website, which has been receiving some great accolades for their existing patient communities (ALS, MS, etc), is launching a community site for fibromyalgia, based on great demand from fellow patients out there! How exciting is that - this proves so many positive things surrounding the illness, some of them being increased awareness and the growing "validity" of the illness in the medical community. This is a great website for us to share not just our personal info and experience, but treatment, medication and symptom history with others in a nice little visibly effective chart that allows you and others to track your progress. I'm still working on building my history, which I expect to show a very interesting progress chart (less medications, less treatments and less symptoms over the years!). I'm a stats/numbers geek so when I see things like this I have to admit I do get a bit too excited. Anyway, I encourage you to check it out and register!!!! My profile is http://www.patientslikeme.com/members/view/minnielee

Also, I don't know how many people are going to read this today, but there is going to be a section in CBS Evening News tonight at 630pm featuring PatientsLikeMe...check it out...you might discover a little surprise...

One last bit - I did my moderate bike for 30 minutes on the trainer this morning. I felt ok, legs are still feeling pretty heavy and slow. Right hip and back are kind of killing, but i'm stretching them out all day long. I really am working towards losing about 7-10 pounds. Losing the load off my muscles and joints would help me greatly with running long distances - right now i'm just lugging around too much for too long! Tomorrow is 5 miles, easy...long...boring...easy but not really easy training day it will be and i'm really looking forward to it!

1 comment:

Matt T. said...

I hadn't visited patientslikeme. Thanks for the info. And thanks for the inspirational posts.